Catamenial Epilepsy can take years to diagnose and can take just as long to find a medication that works.
Why? Because you have to wait multiple cycles to judge the effectiveness of the medication.
Then, when you think you've figured it out, your body and hormones change over time.
A key element of successful treatment is finding a knowledgeable and compassionate provider.
However, they are extremely hard to find. In fact, I myself am searching for an expert right now since my neurologist retired.
Let's help each other out!
PLEASE EMAIL catamenialepilepsy@gmail.com AND I'LL START A LIST!
As suggestions come in, I will add them to this page so everyone can benefit and have options for doctors and second opinions.
This page could bring hope to thousands of women. I look forward to receiving suggestions!
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